Coming off antidepressants and how it was for me

Each one of us as an individual is able to deal with our mental health in a totally personal way in the same way we do with our physical health. If god forbid we were diagnosed with cancer we would be given information about the treatments available to us, how each would affect us and given the opportunity to decide for ourselves which is the best course to take in our own opinions.

When you are diagnosed with any kind of mental health issue the idea should be the same. You should be offered a number of possible routes you can follow in order to feel better and cope with what could be a chronic condition. The good thing about the various treatments for mental health issues is that they can all be used in conjunction with each other (with a couple of exceptions) and usually at least one of these options will help you and make you feel like you again.

I like many of us who has suffered for a long time have tried most of the options available to me to assist with my depression, anxiety and self esteem issues. When I first tried antidepressants I was eighteen. I had reached a point where I couldn’t continue any longer and I at the advice of my GP took the tablets. I also agreed to see a counsellor. I have to say that my experience here was awful. I was so young and numb to everything that I didn’t think to question when the counsellor suggested a different tablet he felt I would respond better to and asked my GP to change my prescription. I didn’t even see my GP to discuss this I just collected the prescription and swapped from the one I was on to the new one in the space of a day.

Anyone who has tried to change or come off antidepressants may now be screaming at the screen. This was of course a ridiculous thing to do without first weaning myself off the first one and I had what can only be described as a psychotic episode at a family friends wedding one day after changing the tablets. Luckily I had only been invited to the evening and managed to keep my meltdown to the toilets otherwise I am quite sure my bizarre behaviour would have ended the friendship. I don’t remember all of it but I can recall screaming, wailing and not being able to stop crying or calm myself. I was so scared. The room didn’t feel like a room and my mum who was trying to look after me could offer me no comfort whatsoever. It got so bad that my mum had to call Karl (we had been together a year at this point) who was working to come and physically remove me from the building and take me home. I remember him having to undress me and put me into bed and stay next to me as I just couldn’t calm down. This may have gone on for hours, I have absolutely no idea.

When I did return to see the GP he was angry I hadn’t been given any advice by the counsellor in relation to the change of tablets and the leaflets inside the boxes just didn’t make it clear that the side effects of withdrawal can be devastating. I’m incredibly lucky that the episode I had was around people who knew me and as much of a nightmare as  I was looked after me and made sure that I was safe. I still shudder to this day when I think back to that night. This was in 2003.

So fast forward to 2014 when after resisting for sometime and in the middle of an eating disorder I relented and realised that tablets were something that I needed again. I had always promised myself that I would never ever go back on them and that I would be a failure if I did. But I had two boys that I needed to think about and it was my responsibility to do all I could to make myself better and with a lovely Community Psychiatric Nurse explaining to me exactly what to expect I got another prescription.

I have never been unable to care for my children with my mental health issues and although I probably don’t need to say it I always feel like people will judge my abilities as a mother when I say about them so to make myself feel better I feel the need to make that point.

I was prescribed Fluoxetine as this I was assured would not make me put on any weight (something that at that point meant a lot to me even though I was so very ill) and I had months worth of therapy, I felt that I totally embraced treatment and wanted to get better and with time I felt the benefit of the treatment choices I had gone with. I had some raises in dosage and being honest my tablets became a part of who I was. Long after the talking therapies ended and I felt ‘better’ the tablets were there with me every morning with my cup of tea and the little green box that contained them was never far away.

As many of you know I had another massive crash in 2017 and this was the one which I think provided me with the most clarity about my mental health. I feel more at peace with my issues now than I ever have and I no longer try and pretend they don’t exist. I acknowledge I am in treatment in some way each and every day and always will be and I use what I need to in order to assist me. These are mostly things I have written about before. Its like my own personal treatment plan that involves me choosing what I need at the time whether that be talking therapies or others I will cover later in this post. The thing is though that in 2018 I was still taking the same increased dosage of my tablets I had been since 2014.

I made the decision in August to wean myself off them not because I felt that I didn’t need them anymore but because of some physical side effects I had been suffering with that my GP felt could be as a result of them. I had never been told that some of the side effects you can have from antidepressants can increase the longer you are on them and when I found this out the thought scared me. I realised that I had stayed on them because I thought I should as opposed to knowing that I absolutely couldn’t cope without them. The doctor and I came up with a plan for me to wean myself off them slowly so I could see if the physical side effects reduced with a view to beginning another if I felt I needed them.

I had to be very mindful of what withdrawal could do as well as equipping myself with ways of dealing with my mental health issues while the chemicals in my brain did their thing. Sounds so simple, right?! I also had to continue to work and be a mum while this was ongoing. I didn’t feel nervous or worried though, I actually felt empowered and like I was doing a good thing for me and my body.

At first I was exhausted but I think that was probably because life at that point was so very busy. The GP explained to me that Fluoxetine is usually one of the easier tablets to come off as it has a much shorter half life than some of the other common ones so gets out of your system more quickly but that this often didn’t work like that and particularly not for people like me who had been on them a long time.

I started to get very dizzy after about a week, not so much that I couldn’t do anything but I was aware of it. I felt spaced, vacant and a bit removed from life. That sounds ever so dramatic I know but that’s exactly how it felt. My memory seemed to suffer a bit and I felt like I wasn’t firing on all cylinders. I took a few days off work to just rest and spent the majority of that time in bed. This was the end of August and very hot so not the best time to be in bed but I listened to my body and it just needed to stop.

I started some new sessions of talking therapies at this time knowing that I would likely be going through some new emotions and not being exactly sure how it would effect me. This helped me massively as the counsellor within about five minutes made me see how anxious I was. I sat in front of her picking at my nails and making the sides of my fingers bleed. I hadn’t even realised I was doing it. At the end of that session she gave me a stone and asked me to keep it nearby and if I felt the need to pick my fingers to pick it up and feel it. Sounds so strange but it really worked. I would feel the stone and roll it around in my hands, feel the edges, the smooth parts, the rough parts and it gave me something else to focus on. It was a calming influence too and I still two months later have it with me wherever I go for if I need it. I actually have two now as I quite like picking the colour I fancy!

She also gave me a notebook and asked me every time I felt I needed it to open it and write down how I was feeling. She explained that she did this every morning and during the day when she felt that her emotions were getting out of control. I began to use the book at work mostly. I would get in every morning and while my computer was logging on I would jot down how I was feeling. Not war and peace and at times just single words but I found it a very efficient tool at clearing my mind which made me more present in the moment. This is something else I still do every morning. Funnily enough I don’t tend to do it outside of work I think because I am in my own sanctuary at home so find it a safer space to talk and be open but without failure at the start of every shift I write a few words in my book. This is something I think I will now continue to do as part of my mental health treatment as I like how in control I feel for addressing those thoughts and feelings and there is something almost like purging them when you write them down.

I spent the following month and a half feeling relatively ‘normal’ for me (don’t laugh!) I had ups and downs but no worse than when I was on my tablets and actually that made me think, do I need to start on new ones. I decided not and to persevere with my own methods and see how I could be as a mental health sufferer without tablets. All was going really well until this last week when I feel like I have had a real slump. I can honestly say I’ve been the most miserable I’ve been in a long time. I’ve just felt low, down, angry , frustrated and unsettled. It occurs to me though that I at this point am totally chemical free. My brain is working itself out on its own and that will surely be having an effect on my mood. luckily it has coincided with a period of annual leave from work where I am focussing on self care.

I have been evaluating, journaling, talking and being kind to myself (lots of hot chocolate too)  I can’t tell you how easy it would be for me to go back to the GP and put myself back on tablets but I feel like I need to give it another month and then look at it again. I think for me acknowledging that I need to give my body and brain time is a massive thing and a way in itself of me taking control of my own treatment. If I go back on another tablet that’s absolutely fine and if I don’t then that’s good too.

I am so much better at listening to myself and not expecting so much of myself and this means I don’t feel like a failure the second I get something wrong. I am also very lucky that I have people around me who know my journey and are always willing to listen. My handbag is full of stones, notepads, essential oils (lavender is amazing) bright lipsticks (an instant boost) and a couple of little things the boys have bought me that always make me smile and I like my handbag am full of things I can do for myself to take charge of the bad days. I can meditate, I can take time to breathe and if I need to I can push pause and take time out. This isn’t always easy with little people and work but it’s amazing how just a couple of minutes of time out can make a difference in a shitty day. I also have the GP’s phone number in my phone and I’m not ashamed to call it if I need to.

In conclusion I am all for doing whatever you need to do to take charge of your own mental health and I respect, admire and have love for everyone who suffers and gets through it in the ways that they can. I of course also know that there are places that in time of crisis I can go and would urge anyone to do the same if they need to. There are places for all kinds of treatments which should be undertaken in consultation with a medical professional if necessary. This is about my personal journey and if you are thinking about making a change in your own treatment please seek advice.

Wow, that was a long post! If you found it helpful please let me know and if you have any questions please feel free to get in contact. I hope I’ve not bored you too much!

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Things we say to ourselves….. Self Esteem Project part two

I have to say that I was blown away by the response I got to my last blog post. I never thought that talking about self esteem in the way I have been would strike a chord with so many of you. I want to thank everyone who took the time to read, to get in touch and who took part in that first task.

I have been thinking lots about future newsletters and how I can make sure that each one is different and looking at self esteem from other perspectives. This week I have been thinking about small things I do on a regular basis to boost my own self esteem. When I say small I mean tiny. Things that others probably don’t even realise I am doing but I am constantly. These things help me get through every single day and I think they will be able to help you too.

I like to call this process ‘things I say to myself’ and I think on some level I have done it since I was small. I realised quite early on that I wasn’t the same as other people. I didn’t have the self confidence and belief that others seemed to and I had to work that bit harder to see the stars through the darkness. In these early days I realised that it made me feel better to hear and read positive things. I would listen to music that I found uplifting and that had lyrics that resonated with me. Some of this music I would turn to at times of upset and need. It was often different music for different things. I recall a Backstreet Boys song (don’t laugh, I’m old!) where the lyrics went and I still remember them by heart ‘if you ever feel like no one cares, when you try your best but you get no where, don’t give in’ yes this is full of emotional teenage angst but it helped me through hard times.

In times of hardship or need I recall talking to myself and saying things I needed to hear such as ‘you can do this’ ‘just get through it Luce’ and various other words of encouragement. Of course we know that I say some awful and nasty negative things to myself but even though I do this I am able to acknowledge that if I say positive things to myself then I feel brighter and able to carry on.

I’m not for a second saying that this method always works. For me it doesn’t. When I am at my lowest few things can pull me out of it and saying kind things to myself won’t all of a sudden make everything better but they will help. They will offer a glimmer of some light even if at the time it is hard to see it.

Last year when I was at my lowest I listened to Jess Glynne on repeat. I have written before about how much her music helped me and her many mantras about not being too hard on yourself and moving forward became the words I would say to myself just to get through the minutes of the day.

I got to the point where it helped me massively to write down all these positive things I would say to myself as constant reminders that I could refer to when I needed it. I had notebooks all over the place full of doodles with inspirational quotes and positive mantras filling the pages. I have written before about my ‘Quotes to live by’ Pinterest board which I still fill on a daily basis with these positive things I can say to myself that will at any time of need give me a boost.

This concept isn’t a new thing. Daily affirmations are practiced by many, positive quotes adorn the walls of houses across the world and the wartime slogan ‘keep calm and carry on’ is uttered all over the place on a regular basis. There is a reason for this. The things we say to ourselves are important. They can make us feel things. They can help us. It doesn’t cost any money and you can use them at any time day or night.

So….. this weeks task then is to come up with some things to say to yourself that are personal to you to help to boost your self esteem. I would like you to write them down, doodle them, make them pretty, stick them on your wall or keep them on a piece of paper you carry with you. Have them accessible and near so if you need that boost you can always use them. I am going to share some of my favourite ones with you and also some resources that can help you come up with your own or find some that suit you.

I understand that this may seem daft. In a world where suicide is so prevalent and mental health issues are so common surely if it’s as easy as saying some nice things to yourself then we would all be fine. Of course that’s not the case but surely if anything can help even in the tiniest of ways then it’s worth a try?

Here are some of my favourites:

‘Life is tough darling, but so are you’

‘You are enough’

‘You are far too smart to be the only thing standing in your way’

‘A woman is unstoppable after she realises she deserves better’

Go to Pinterest, Instagram, Twitter and look up motivational and inspirational quotes, create yourself a board, favourite some tweets or save some Instagram posts so you have a bank of motivation whenever you need it and add to it as often as you can. You can do this in a notebook or diary too so you always have something with you that can help.

I would love to hear your ideas of things you will say to yourself to help boost your self esteem. Please share them and I can create a list to share with you all. Even if you are only able to come up with a couple of things that you can use if you incorporate them into your day I assure you they will help.

I hope you have enjoyed this second instalment of my self esteem project. I still haven’t worked out how to set up a newsletter but as soon as I do I will let you know!

I love to hear from you so get in touch if you need to.

Lucy xxx

A little less me than usual……

As any of you who suffer with mental health issues to any extent know sometimes they can rise up and smack you in the face when you are least expecting it. Sometimes life is just life, relatively normal, ticking along and suddenly you feel like you want the world to open up and swallow you just to keep from having to face the day.

Being honest I’ve had a few hints that this was coming, I’ve noticed myself looking in the rear view mirror of the car over the last week and not only using it to drive the car safely (yes sometimes I can manage driving!) but also as a way of criticising myself, comments like ‘look at your wrinkles’ and ‘shit job with your makeup today Luce’ have been creeping back in. I’ve been drawn to my bed to the point where getting up has been getting harder and some of the things I usually find joyful don’t seem to have been giving me the smile they usually would.

The final thing that has tipped me over the edge is the snow. I didn’t realise how much anxiety I had about driving in the snow until this morning. Yesterday karl was off and he has no issues driving in snow so it was something that I didn’t need to worry about. Today with the task of getting the boys to school and me to work I have literally gone to a million pieces. The thought of starting the car and skidding all over the place is all too much and I feel like my chest gets tighter every time I think about it. As it’s turned out Leo’s school is closed and I’ve decided not to risk driving to get Nate in after seeing the carnage on the hills going down into town on Facebook. Yet I’m frozen to the spot worrying. This ridiculous, illogical and quite frankly irrational worry is crippling me.

I have sorted a lift into work but I’m panicking about what will happen later if we can’t get home. I’m worried about karl getting home from work again. I’m worried that I don’t have the energy to get into the shower and that when I do get into work I will be less than useless. I’m worried because my sickness record is appalling thanks to my hysterectomy last year and I have to have my toe nail removed on Monday and I can’t be dealing with a spike in depression and anxiety now.

I am concerned that the people I love are getting fed up with how useless I have been lately, how little I have been myself and how much of a drain I am. Let alone the fact that soon I will be the one with one less toe nail and look like some sort of oddball. I’ve been in flip flops and one shoe on one off for about two months now and am getting a bit sick of it all.

I think reading this back it’s quite obvious why I’m feeling low. I have an exam coming up at work, some out of work commitments, an impending building project, surgery, a mess of a house and a general feeling that I’m absolutely not up to any of the tasks at hand. The snow seems to have been the straw that broke the camels back!

Being honest I’m not sure why I’ve written this post. It helps me to write things down, so I can make sense of how I’m feeling and so I know that anyone reading will understand why I’m not being myself. I also hope that other sufferers will like I often do take stock of the fact that I’m not the only one suffering. I know I have to keep going because I have no other choice but inside I want to curl up in a ball and sleep forever.

Be kind lovely people, look out for others, it may not make sense but many of us are not quite ourselves at the moment. If you managed to read this drivel I applaud you, not only do you deserve a medal but a massive cocktail with a sparkler and umbrella on me!

Sorry for being miserable. Hopefully I will be okay soon.

Lucy xxx

Illness, bike riding and lost crocs…….

You know how sometimes you get to the end of a long day and just need a really good giggle? Read on lovely people……..

Today is one of those where I work the day and Karl works the afternoon and night so my parents pick the boys up from school. I go straight to their house and they usually feed both me and the boys before we go home about seven pm for bedtime.

Tonight I got back to find the boys doing clay modelling with Nana, she loves any kind of messy, knife wielding and potentially get paint everywhere crafts so I let her get on with it and watched with a nervousness that I can’t describe while Leo flung around the small knife chopping clay into various shapes. 

The boys ate tea and Nate not even half way through eating declared he felt terribly poorly and took himself off into the living room. Now my Nate is a big boy who loves all the boy things there are in this world. He is also one of the biggest drama queens I know and often goes to extremes when he feels poorly asking questions such as, ‘is it my heart?’, ‘do I need a blood transfusion?’ and ‘is it a deadly disease?’ 

Tonight was no different and within what seemed like minutes he had worked himself up into a huge tizzy and was very concerned he would be sick. He reminded me a bit of a woman in heavy labour, all heavy breathing and uncomfortable movements. It got to the point where not only did he feel sick but his neck was hurting, he couldn’t swallow properly and he was almost delirious. I then went into typical mum mode and thought just incase he had indeed developed some kind of tropical disease that I should get him checked out.

We drove to our Doctors which also has a minor injuries walk in centre attached. Usually they have nurses who can prescribe and often the doctors work late. We went to the lady at reception with Nate leaning on the desk with his heavy breathing and humpback whale type moans. She gave me a perplexed look when I answered the question of whether it was an injury or an illness with ‘I’m not really sure’ and ushered us through to the waiting area where Nate continued to whale loudly.

The kind lady doctor called us in and Nate who had tears steaming down his cheeks went into full flow about how his breathing was strange, he felt sick, his neck and throat hurt and that he blamed the ham from school. She also looked at me perplexed and asked if Nate often got this anxious. I explained that he hates being ill and even the thought of it makes him get into a real tizzy so she was extra patient with him. Turns out his glands were up in his neck so we were prescribed antibiotics and he was told to rest up.

My plan next was to drive to our local Tesco to get his medicine which would take around ten minutes. Nate was having none of this so I delivered him back to Nana’s (by this point it was pouring with rain) and shot to Tesco on my own. The lady at the chemist said I had a few minutes to wait so I found myself by the flowers and picked out some peonies for me and pink roses for my mum. 

I collected the medicine and left the store with handfuls of flowers and the little white bag the medicine comes in, my hair was everywhere and I was soaked. I must have looked very strange. By the time I got back to Nana’s and gave Nate his first dose of medicine I felt exhausted and that we should all be getting home. Nate happily came but Leo refused to put his shoes on and ran off out of the back door into the pouring rain.

I loaded the car with all the things that needed to go home, school bags, shoes, clay models, hats and Nate loaded himself in. Leo then appeared on his bike which he has only just learned to ride without stabilisers cycling round and round the house in the pouring rain. On his second trip round I realised he was wearing a giant pair of adult crocs, Grandads crocs. 

The next thing I knew Grandad himself was running after Leo shouting, ‘he’s got my crocs!’ While I sat in the car windscreen wipers on full pelt wondering if this kind of thing ever happens to anyone else. It took a reasonable amount of time for them both to return for a third loop this time Leo wearing nothing on his feet and Dad telling me as he went past that Leo had thrown the crocs on the lawn. 

On the next rotation Grandad appeared with Leo over his shoulder in a fireman style lift. Leo was placed into the car and as we drove off I looked in my mirror and saw him smiling to himself. He had been having a wonderful time.

We got home and I had to unload the car, I had flowers, two school bags, one handbag, one pair of shoes, half a shepherds pie (leftovers) clay models of Saturn and Neptune, my work bag, two drink bottles and two hats. Nate held his prescription and Leo unlocked the front door. We walked in and everything in my arms dropped to the floor, I managed to catch the Shepherds pie and promptly got the boys into bed. 

They are still awake and I’m eating the rest of the shepherds pie which I planned on having for lunch at work tomorrow. 

Oh well it’s not like it’s only Monday and we still have the rest of the week to go……. oh wait!